Showing posts with label seizure. Show all posts
Showing posts with label seizure. Show all posts

29 April 2011

Still a reason to celebrate.

Every morning I wake up with half-squinted eyes peering open to the sounds of a crying toddler over the bedroom monitor. Every morning I pull William out of his crib, who instantly wedges his head perfectly in the crook of my neck, and every morning, with wobbly knees we scoot downstairs.

As we round the landing of the stairs, we stop for a moment to look out outside to see snow or a pink sunrise or a moose or sometimes just a grey, gloomy, hazy dawn. Once we’re satisfied that it is indeed morning and we are indeed getting up for the day, we proceed the rest of the way downstairs where I’m hit,every morning, by the intense aroma of coffee gurgling in our red coffee pot. Ron brews two cups of coffee for me --rain or shine-- every. single. morning.

Today however, was not like all of my other every mornings. Today my girl and I woke up at the crack of dawn to undergo an EEG. Today my girl was nervous beyond belief, but wore her big girl brave face.

pardon my blurry photo

Krysta has been having random, non-patterned, on and off seizures for the past 3+ years. There’s no rhyme or reason on what causes her to have them; the only thing that’s constant is the actual seizure itself -her eyes roll back, she collapses, and her body does a little shake making her body extremely limp.

We’ve done an EEG before, but the results were unsuccessful. We’re praying that we can find answers, so we can get down to the root of the problem.


When your world is shaken up with the not-so-perfect combination of uneasiness, worry, and insecurity, we tightly wrap ourselves into one another.

We are a family. We are entwined together. And we deal with the good, the bad, and the unknown together.

  

In celebration of one step closer to finding answers, we treated the kids to a rare outing to Moose Tooth Pizza, the most delish, overpriced pizza in Alaska, followed by a trip a Barnes & Nobles for new books.

 I'm currently reading "The Fixer Upper" (love Mary Kay Andrews!) Krysta's reading...all the rest!



We tend to find many reasons to celebrate around these parts –birthdays, a lost tooth, a “hey I finished all the laundry”. It’s the good, the bad, and the unknown that makes up life, and that alone is worth celebrating, every day.



“The more you praise and celebrate your life, the more there is in life to celebrate.”  ~Oprah



 Happy Friday!

Em

09 November 2010

Worrying does no good.

There’s a saying that goes, “worrying does no good.” So why do we do it? Better yet, why do I do it?

I worry all the time. I worry about the present, the unknown, things I have no control over. I even worry about the past and how it could affect the future. But with worrying, comes caring- they go hand in hand, you know. If you didn’t care, you wouldn’t worry. With that said, I’m okay with worrying because it just means I care… A LOT.

If you’ve read this post, you know where I’m headed- Krysta’s seizure. I have to keep reminding myself that I mustn’t dwell because it’s out of our hands, out of our control. I need to rely on God and to know that he has a plan for us. We’re good people. And yes, sometimes bad things happen to good people, but that’s where faith kicks in. Faith will give you strength and courage and hope beyond your wildest imagination.


We’ve been to the doctor and now we’re waiting on two referrals- one for an EEG, and another to see a neurologist.

Players take your mark; we now begin the waiting game. This is a game that I don’t play very well. I’m a poor sport. I’m impatient. I want answers and I want them now. Waiting is not my forte’.


Krysta's drawing while waiting on the doctor

We’ve all played this game at one point or another, so as my first move, I’m going to stay calm and carry on. I’m going to enjoy the simple carefree life that we’ve strived to create for our little family. I’m going to embrace the moments of calm and brace myself in the moments of chaos.

Until our next hurdle, I’m getting a charge out of the little things, like building snowmen.





Taking delight in hot chocolate after building said snowmen.



Being deliriously happy to see my girl get an academic award along with an outstanding citizen award.




Despite my worries and distress, I refuse to have the whole woe is me attitude. It’s not my style. There’s so much good in our lives, so much to be thankful for; we are blessed indeed.